Avon

Toni (MS Member) will be leaving Avon catalogues and order forms in reception area.

Feel free to browse catalogue and place any orders.

Sainsbury Collection, Didcot

 

Many thanks to Gloria, John and Angela Day,  Jenni McMillan’ Tessa Draper and friend, Toni Rauilovic and Dave Webb.  You collected £316.89 which is a good amount for a Sunday.  

I really do appreciate you giving your time.   

Sue

NEW – Bookings for gym equipment

 

With immediate effect bookings now need to be made to use any of the equipment in the gym, ie: the 2 bikes and balance trainer.  It is getting very busy and we have had some clashes.

With thanks.

How to Improve MS Related Imbalance

Source: Multiple Sclerosis News Today

One of the earliest symptoms that appeared before my multiple sclerosis (MS) diagnosis was imbalance. I remember turning my head to look at something and feeling slightly off-balance. I didn’t think much of it at the time, but that wobbly sensation gradually increased through the years.

Occasionally, I would bump into walls and nearly fall, appearing drunk, and clumsy. I knew something was off, but I wasn’t sure what was causing my balance problems.

The article, “Causes of balance and walking problems,” from the Multiple Sclerosis Society U.K., examines why MS patients may experience issues with their balance. It stresses how many body parts need to work together in order to have “good balance.”

According to the article, our brains have difficulty relaying the information they receive when MS is present. The connection can be faulty due to the damage caused by MS. Therefore, it affects how the brain shares information and causes imbalance.  Read on.

 

Kadeena Cox: I was a nobody two years ago – now people think I’m famous

Source: The Telegraph

This time two years ago Kadeena Cox  was, by her own admission, “a nobody”.

She was a young woman attempting to come to terms with the sudden onset of multiple sclerosis that had shattered her dreams of competing at the Olympics, and she was a nervous sprinter dipping her toe into the world of para athletics for the first time.

It was an experience that would see her win her first world title and change her life completely – she won another, and then three medals at the Paralympics last year, including two golds.  Read on.

6 of the Best Apps for Chronic Illness Management

Source: Multiple Sclerosis Today

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage your chronic illness.

Here is a list of some of the best mobile apps for managing your chronic illness, click here to read on.

MRI scans could help predict MS progression

Source: MS Society

New research has found that MRI scans can help predict how MS will progress. MRI is already used to diagnose MS.

Results of a long-term study are being announced at the MS Society’s research conference, MS Frontiers 2017. The event brings together the UK’s leading scientists and clinicians every other year to share their latest findings.

Long-term insights

The study at the Queen Square Multiple Sclerosis Centre ran for 15 years and involved 164 people with clinically isolated syndrome (CIS). People with CIS have experienced one episode of neurological symptoms and often go on to be diagnosed with MS.

Researchers looked back at MRI scans carried out when people were first diagnosed with CIS. They found that early spinal cord damage was a sign that people were much more likely to go on to develop the secondary progressive form of MS.

They also discovered that having a spinal cord MRI scan not only helped with diagnosis, but also gave an insight into the level of disability a person was likely to face in the future.

The study was funded by the MS Society and led by Dr Wallace Brownlee and Professor Olga Ciccarelli.  Read on.

European licence recommended for Cladribine (Mavenclad)

Source: MS Trust

The next step in the approval process is for the European Commission to grant a licence for cladribine, taking into consideration the EMA’s recommendation. Cladribine will then have to be appraised by NICE and the SMC to determine availability in the UK.

In anticipation of the granting of a licence, NICE have already started the appraisal process and a decision is expected to be published in February 2018. The MS Trust is contributing to the appraisal. If NICE approves the use of cladribine, it could be available on the NHS from June 2018.  Read on.