I would like to let you know about a new project the Royal College of Physicians Health Informatics Unit is leading on improving patient care records for people with long term conditions.
The project is part of a European project to develop electronic health record which are accessible and a benefit to patients. The RCP contribution has been to explore with patients those issues that are of particular importance to them with respect to how their illness affects their lives.
We would be very grateful if you could circulate the following survey invitation to your patient and carer networks using all communication channels available (e.g. newsletters, email, social media, additions to website etc):
Improving patient care records for people with long term conditions survey
The Royal College of Physicians Health Informatics Unit want to improve the way information is recorded for people with long term conditions. To do so, we need your views on what you would like your clinician to know about how your condition affects your life.
If you are a person with a long term condition(s) or someone caring for a person with a long term condition(s), we would be grateful if you would complete this survey. It should take no longer than 15 minutes to complete and is open to both United Kingdom and non-United Kingdom residents.
We will use the information you provide to develop standards for the way this information is recorded in clinical notes.
To access the survey please visit: