The PIP 20-metre rule is failing people with MS. And people are losing their independence as a result.
New research shows this is predicted to cost the UK Government £92 million over three years – more than it will have saved by cutting PIP payments.
Now, the UK Government are reviewing their spending for the next few years. This is your chance to tell them the 20-metre rule simply doesn’t make sense – for the UK Government or people with MS. Join the MS Society campaign here!
Source MS Society: Small but mighty, mitochondria provide the energy that busy nerve cells need to survive.
We spoke with mitochondria expert Dr Don Mahad, from the University of Edinburgh, about what makes them so special – and what goes wrong in MS.
Mitochondria and progressive MS
‘I’m interested in energy production and demand in the brain and spinal cord, and especially how this changes in progressive MS.’ It’s the mitochondria that generate the bulk of this energy.
‘Mitochondria are smaller than the size of a pinhead, yet play a critical role in keeping us healthy’ says Don. ‘The healthy brain makes up just 2% of your body but takes 20% of the energy. To meet this demand, mitochondria station themselves all along the nerve fibres.’ Read on.
Source MS Trust: From 1 April 2019, gabapentin and pregabalin have been reclassified as controlled drugs, leading to changes in how they are prescribed.
Gabapentin and pregabalin are drugs used to treat a range of symptoms caused by MS, such as nerve pain, spasticity and spasms.
Following concerns about misuse of these drugs, on 1 April the law changed so that it is now illegal to possess gabapentin or pregabalin without a prescription and to supply or to sell them to others. Read on.
Source BBC: Lifts and adjustable ticket counters will be among the new measures brought in over the next five years.
The changes, part of an “inclusive transport strategy”, will help disabled passengers as well as those travelling with children or luggage. Liverpool Central and Luton in England, Barry Town in Wales, and Dumfries in Scotland are among the stations chosen.
The Department for Transport says the sites were selected based on criteria which included their usage, level of local disability and value for money of the work.
Train stations are a nightmare for people like me
Disabled rail users ‘an afterthought’
MP hopes for station lift ‘within a year’
Transport accessibility minister Nusrat Ghani said: “Transport is vital for connecting people with work, friends and family, but also to enable them to enjoy visiting some of the wonderful cultural, historical and natural sites across the UK.” Read on.
Source MS Trust: NICE will be assessing Plegridy to decide whether it should continue to be prescribed by the NHS in England. We’ll be telling NICE why we think it should be an option. If you are taking Plegridy we’d really like to know what you think of it, your experiences good and bad.
If you would be happy to talk to a member of the Information Team about your experience of taking Plegridy, please email email@example.com.
Last year, NICE decided that Avonex, Extavia, Rebif, Copaxone and Brabio should continue to be available on the NHS in England. At the time NICE was unable to make a recommendation on Plegridy so they are now carrying out this separate appraisal. Whatever their final decision, if you are already taking Plegridy, you won’t be affected. Plegridy has already been approved for NHS use in Scotland and Wales. Find out more about Plegridy here.
Source University of Nottingham: A new £1.85 million research study led by Professor Roshan das Nair at the Institute of Mental Health aims to develop a new computerised screening tool to detect the “invisible” cognitive impairments that can appear early in the life of a person living with multiple sclerosis (MS).
Approximately 100 people are diagnosed with MS every week in the UK and up to 70% have cognitive problems. People are most commonly diagnosed with MS in their 20s or 30s. There is currently no cure for the lifelong neurological condition that often gets progressively worse. Read on.
Please come and join us for an afternoon of exercise, relaxation sessions, tea/coffee/biscuits and chat.
Physiotherapists from the Physical Disability Physiotherapy Service will be running exercise classes and relaxation sessions. The classes will be suitable for people with MS of all abilities, including those in wheelchairs. Come along and have a go!
Information will be available about exercise with MS locally, and Sue Barnden, the MS specialist nurse, will be there.
Please contact PDPS on 01865 904411 for more information or with any questions.
Abingdon Health and Wellbeing Centre, Crabtree Place, Audlett Drive Abingdon OX14 3GD
Dear Readers, The big question is: “HOW much should we be doing, how much is enough, what should I be doing? “
In Generation Games we hear these questions frequently. It is not surprising, since exercising, keeping active and maintaining a healthy lifestyle is now in the news more and more.
The answer is: as much as you are able to! In fact, you are probably already doing a fair bit without realising it! Walking to the bus stop, shops, with a friend; cycling to do the shopping; gardening; walking up and down stairs (anything that gets your heart rate up) – it all does count.
Government guidelines tell us we should be moderately active for at least 150 minutes per week. A nice way to think of this is doing 30 minute chunks on 5 days per week. And if you join one of our classes that’s already 60 minutes (so you’re half way there!). Strength exercises are also vital – try to do these twice a week, this could include weight training, carrying heavy loads, heavy gardening. Again, strength exercises are covered in Strength & Balance classes.
Kindly contributed by one of our exercise instructors, Charlene Howlett. – Editorial: news from partners below –
sent to us by Oxfordshire Clinical Commissioning Group Do you live in the OX12 postcode area? Your opinion counts!Survey to Plan for the future Health and Care needs in Wantage and Grove (OX12) We want to know where those services are provided from and where people have to travel to access them. This information will be used to help shape the way services are planned and delivered to in the future.
I am trying to find out whether members would be interested in purchasing CBD oil, possibly through the centre.
The supplier runs a business that wholesales high quality organic CBD oil to brands in the UK and Europe and he tries to help where he can so supplies Gloucester MS centre at a highly discounted price.
In order to keep costs down we would need to purchase 5 bottles at a time of the oil. He can supply 1200mg / 10ml organic full spectrum CBD oil with an organic coconut MCT oil carrier for roughtly £40, he says oil of this strength and quality normally retails at £70+, and also can supply 3000mg/10ml organic full spectrum CBD oil with organic coconut MCT oil carrier for £110 per bottle for you, he says product like this normally retails at £160+.
There are many other products but they are not as strong, although if we are interested he can send me some honey and coconut oil. They can also make capsules if preferred.
Anyway, if you can let me know if you are interested I can gauge whether it would be worth it and make further enquiries.