Sad News

Sad news.  Ian (John) MacKay, our physiotherapy for many years,  sadly passed away on Friday 23rd August.  Ian started working at the centre in April 1976 and only retired a few years ago.  His health deteriorated over the last year and after falling and breaking his hip a few month ago and getting an infection, he sadly passed away.  His funeral is being held on Monday 16th September, 2.30 at Oxford Crematorium.  The wake will be at his local drinking establishment, The Prince of Wales in Shippon.  Our condolences to his family and friends.

McTimoney Chiropractic Care

Natalie our chiropractor has been here nearly 6 months now.  She is looking to extend her hours and is now available from 10am, every Thursday.

Whilst chiropractic cannot halt or reverse MS, it can offer symptomatic relief of pain which comes from wheelchair use, trauma from falls and altered posture. Treatments can take place either on the bench or wheelchair users restricted in mobility can be adjusted in their chair if preferred.
Chiropractic care focuses on musculoskeletal care and spinal health and is a hands-on, evidence based form of spinal and joint manipulation.

In a study of chiropractic care conducted amongst members of UK MS therapy centres, 42% of those surveyed utilised chiropractic care with the majority stating that they did so to manage their MS symptoms. “It likely that most utilise chiropractic care to manage pain, as this is one of the commonest symptoms”. (Carson et al, 2009. Chiropractic care amongst people with multiple sclerosis: A survey of MS therapy centres in the UK).

Dr. Bill Code from Canada spoke at last year’s MS National Conference

Dr. Bill Code from Canada spoke at last year’s MS National Conference.  He was diagnosed with MS 22 years ago and as an anesthesiologist, his response had been to extensively research all he could about ways in which to live with MS.  Dr Code has has now produced a brilliantly researched book – Solving the Brain Puzzle – looking at how to approach MS from an integrated approach.  The book considers among other things:

  • the effects of Diet and the links between the Gut and the Brain, 
  • the range of interventions from Oxygen Therapy through Physiotherapy and Massage Therapies,
  • the importance of exercise and sleep

It is written for those with some form on Neurological condition, not just MS and is written for the Lap Person – though there is plenty of medical language.  Many of you will also be pleased to note that Bill includes references to all his research so that each note or recommendation comes with a reference to the supporting research.
If you would like to borrow the copy we have at the centre, please speak to Sue.

Brain ageing has been reversed for the first time – offering hope of cure for Alzheimer’s disease & multiple sclerosis

Source The London Economic: The groundbreaking feat was achieved by destroying a protein that stiffens the organ – much like muscles and joints.

Brain ageing has been reversed for the first time, offering hope of a cure for Alzheimer’s disease and multiple sclerosis, say British scientists.

The groundbreaking feat was achieved by destroying a protein that stiffens the organ – much like muscles and joints.

Just like bones it ‘creaks’ as we get older – impairing the function of stem cells that generate neurons.

Using the brains of rodents, lab tests showed they could be rejuvenated by focusing on oligodendrocyte precursor cells (OPCs).

This is a type of stem cell needed to repair myelin – the fatty insulating material that coats nerve fibres.

In multiple sclerosis this is damaged. The loss of OPCs is also linked to dementia and Parkinson’s disease. Their function even declines with age in healthy people.

The findings published in Nature shed fresh light on the ageing process, report the Cambridge University team. Read on.

Lack of residential care for younger people with disability

Source ITV: Nina, 46, is housed in an old people’s home.

he’s just 46 years old. But Nina Thair has been housed in an old people’s home in Sussex. She has multiple sclerosis – and her local council says there is nowhere else suitable for her.

Nina’s problem – the council’s problem – is that the lack of money for social care, means that residential places are in short supply.

And with nowhere for the needs of younger disabled people in Brighton, the council says this is the only option. John Ryall reports. Watch here.

NICE rejects Sativex in draft guidance on cannabis-based medicinal products

Source MS Trust: Draft guidance published today on August 8 does not recommend Sativex as a treatment for MS spasticity because it is not a cost-effective treatment.

In November 2018, the legal status of cannabis was amended to allow specialist clinicians to legally prescribe cannabis-derived medicinal products to patients with an exceptional clinical need.

To support this change, NICE (National Institute for Health and Care Excellence) has reviewed evidence for the benefits and costs of cannabis-based medicinal products and drawn up guidance for health professionals and the public.   

The draft guideline(link is external) acknowledges that, for people with MS, Sativex can be an effective treatment for MS spasticity which has not responded to other therapies.  However, Sativex is not recommended because, at its current list price, it is not considered to be cost-effective.  The calculations used to reach this decision indicated that Sativex would be cost-effective if the list price was reduced from £375 to £188 per pack.  Read on. 

The MS Trust have launched a new pack to help teachers and pupils raise awareness of MS and dispel some common myths and misunderstandings

Source MS Trust: MS Trust supporter Jenna Chudasama teaches at a secondary school in Leicester and recently used the pack to deliver an assembly to students about her own MS experience. “I hope that I inspired others to live their life to the full, no matter what challenges they are faced with,” Jenna tells us.

I was grateful to be given the chance to deliver assemblies at Sir Jonathan North College, the school that I teach at, to explain what it is like to live with an invisible condition.

It was a daunting experience at first as I did not know how my students would react. And, to be honest, I remember questioning my decision when, despite showing a small group of students an MRI scan and explaining how lesions work, someone still said that I looked fine and healthy. However, I was eventually able to help my students understand a little more about the condition by simplifying the terminology, using a lot of my personal experience and the experience of people in the public eye, such as the athlete Kadeena Cox. Interestingly, some of my older students came to tell me that they know someone in their family or a family friend that also lives with the condition and I hope that I was able to offer additional support to them.  Read on. 

Grant from MS Society, Parkinson’s UK to Establish Digital Brain Bank

Source Parkinson’s News Today: The Multiple Sclerosis (MS) and Parkinson’s Tissue Bank at Imperial College London, is the largest repository of brain and spinal cord tissue samples in Europe.

Now, the MS Society and Parkinson’s UK has announced a £3 million grant (about $3.6 million) to support its transition into a digital brain bank powered by a virtual reality platform, which will provide new tools for researchers around the world with the ultimate goal of stopping Parkinson’s and other neurological diseases.

These new technologies will be used to create high-definition pictures of brain tissue donated by people with Parkinson’s and multiple sclerosis (MS) after their death.

The Tissue Bank, established in 2009, originated from The UK Multiple Sclerosis Tissue Bank and the UK Parkinson’s Disease Society Tissue Bank, both located at the Imperial College in London. Over the years, this repository has collected samples from patients with MS and Parkinson’s disease, as well as healthy donors. Their collection has a large number of well-documented clinical cases that have been used in more than 700 research projects. Read on.