| View in browser |
| Presenting Enable Magazine May-June issueThe UK’s leading disability and lifestyle title Read the magazine The summer months are just beginning and this issue has a wealth of content to keep you informed, entertained and inspired. For this issue’s lead interview, we meet neurodiverse author Elle McNicoll to talk about her hit novel, A Kind of Spark, and the process of adapting it into a TV series. Inside, we’re putting the focus on the importance of community as we spotlight the contribution unpaid carers make, before learning about fostering. Reaching out for support from others can be difficult but important: we’re sharing tips on coping with anxiety and when to seek help; two women share their positive experiences of having Barbie butt surgery; and we meet a charity helping to remove barriers to period education. This issue, we’re also sharing Scottish holiday inspiration and discovering an accessible Jersey hotel; Yvonne Cobb shares her latest recipe; and we go behind the scenes of the campaign aiming to improve election accessibility. Plus, a disability employment adviser explains their role; we put the spotlight on barriers to higher education; and we meet the police officer turned designer launching an adaptive clothing brand. All of this and much more inside. |
AGM Thursday 8th June at 3pm on Zoom
AGM Thursday 8th June at 3pm on Zoom. Meeting ID (as always): 718 389 8662, password: OMSTC. If anyone wants copies of the papers in advance please let Sue know.
100 club winners April
100 club winners April:
1st prize – Sam Reilly
2nd prize – Nandi Ablett
3rd prize – Martin Gulliver
Sharing a prize fund of £90
You’ve got to be in it to win it! Speak to Sue to join!!
MS Awareness Week is next week
Thank you to everyone who has already shared their story with us ahead of MS Awareness Week. If you haven’t, there’s still time for you to get involved. Please complete our form if you’d like to contribute.
Next week there are some brilliant webinars coming up. We have listed some below and we are sure there will be more added next week. Follow us on Facebook and Twitter to stay up to date.
Useful webinars during MS Awareness Week
You might like to sign up for the following webinars and online sessions run by some of the national MS charities during MS Awareness Week;
- What is MS?, MS Society webinar – 25 April
- MS in the workplace, MS Society webinar – 26 April
- Talking to Children and Young People about MS, MS Society webinar – 27 April
- MS: Your Emotions and Feelings, MS Trust live stream – 26 April
Useful links to other charities for MS Awareness Week
For further information about MS Awareness Week, you can visit the following websites from national MS charities and organisations;
https://www.mssociety.org.uk/get-involved/ms-awareness-week
MS Newsletter Spring/Summer 2023
Boat trip
Would you be interested in a boat trip? We had 2 trips last year and they were very successful and much enjoyed. If you are interested please let Sue know and she will try and organise something…….
Don’t miss out on donations for Multiple Sclerosis Therapy Centre Oxfordshire!
| Spread the word about BIG donations |
| Don’t forget you can do this via Facebook, Twitter, Instagram, Whatsapp |
| Copy, paste and share You could raise BIG free donations including up to £150 for Multiple Sclerosis Therapy Centre Oxfordshire when you use #easyfundraising to purchase insurance, broadband, mobile upgrades, ISAs or holidays. Booking.com, MoneySupermarket, SKY TV & Broadband, Carphone Warehouse, Scottish Friendly and many more will donate to us for FREE! Sign up here: https://www.easyfundraising.org.uk/causes/omstc?&utm_medium=Email-share&utm_source=Facebook&utm_campaign=save-and-raise&utm_term=CE741 |
MS Society webinar – New DMT Tool – 19 April
Choosing a Disease Modifying Treatment (DMT) can be daunting, whether you are newly diagnosed or changing treatment. There’s lots of information out there on DMTs and it can be difficult to read through and make the choice that’s right for you. The MS Society have developed their DMT Decision Making tool and in this session their facilitator will tell you a bit more about the tool. You’ll also get to hear from volunteers and find out how they made the decision of choosing their DMT and process they went through.
This new tool is for you if you live in the UK, Channel Islands or Isle of Man and have:
- relapsing remitting MS
- some types of primary or secondary progressive MS
Date: Wednesday 19 April
Time: 6pm to 7pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
The Octopus MS trial
Over the last few weeks there has been a lot of discussion about the Octopus MS research trial. It even made the BBC homepage.
But what is it about?
The Octopus trial will test drugs to help people with progressive MS. The MS Society has produced a short film explaining all about the trial.
Watch the MS Society video about the trial
The MS Society said on Twitter: ‘Our mega-trial for progressive MS – Octopus – has started recruitment at its first hospital site. This means the first few people with primary and secondary progressive MS have begun taking part.’
Find out more about this development and how you could take part here.
Here is what the MS Society say….
‘Octopus is a revolutionary trial that will transform the way we test treatments for progressive MS. A smarter way of testing potential treatments, it could deliver life-changing new treatments up to three times faster.
Octopus uses what’s called a multi-arm, multi-stage (MAMS) design – the first time this has even been done in MS.
MAMS trials make it possible to test new treatments up to three times faster by:
- Testing multiple drugs at once – and comparing them with a single control group.
- Using MRI to get an idea of whether a drug looks like it has potential, many months before we’d be able to see an effect of the drug on disability progression. Promising-looking drugs stay in the trial, with hundreds more people joining the existing participants. So what would normally be two consecutive trials are delivered in one.
- Adding the flexibility to drop drugs that don’t look promising, and slot in new drugs as they’re discovered.
Merging separate trials may sound obvious. But launching a MAMS trial for MS needs so many things to line up perfectly. From hospitals around the country equipped to be trial sites, to the incredibly complicated statistics that underpin the design.’
The MS Society has published a film on their Social Media with trial leader Professor Jeremy Chataway explaining how the Octopus trial will test treatments. Click on the links below to watch it.
MS Awareness Week is coming – share your story
24-30 April is MS Awareness Week when many of the national and local MS charities and organisations come together to raise awareness and share information. We know that together we can make more noise and raise more awareness of the impact MS can have.
This year the theme is Mental Health. Many people may be aware of the physical aspects of MS but there are many ways in which a diagnosis can affect mental health too.
Join the #MSMakesMe campaign and share your story
Help raise awareness of the reality of life with MS. During this year’s MS Awareness Week, MS charities will be talking about how MS makes you feel, think or act, whether you have MS yourself or care for someone who does. Does MS make you scream, feel brave, tired, positive, worried for the future, or hopeful? We know it’s different for everyone and we want to hear from you.
