Source MS Trust: Listen to Breaking it down.
Covering all aspects of life with multiple sclerosis, our podcast features a combination of expert advice and real-life experiences from people with MS. Listen to Breaking it down – A multiple sclerosis podcast now via Apple Podcasts, Spotify, Amazon Music and Google Podcasts. Find out more here.
Source MS Society: A new study has discovered a specific gene plays a major role in myelin repair becoming less effective as we age.
To stop MS from getting worse, we need to find ways to repair damaged myelin – the protective coating around nerves in our brains.
Although our bodies have the natural ability to repair myelin, this process breaks down in MS. Recently, researchers have discovered that ageing is a key cause of this breakdown. But they aren’t sure exactly why.
A new study published this week has started unravelling what happens to cause the natural myelin repair process to stop working properly when we get older. Read on here.
Source MS Society: I was in two minds about getting the COVID-19 vaccine.
Like many of us with MS, I had a lot of questions about COVID-19 vaccines. I ended up deciding to get the Oxford AstraZeneca vaccine and wanted to share a bit about how it went.
A bit about me and my MS
My government name is Janade, but please, we’re all friends so call me, JJ.
I’ve spent most of this lockdown trying to rebuild my strength and perfect more plant-based dishes. I’m also a very proud cat and plant mum.
I was diagnosed with relapsing-remitting MS when I was 17. On a good day the fatigue, poor coordination and body aches can really slow down my day. On a bad day my body feels like I’ve been on a bender all week. Which wouldn’t be so bad if that was actually the case. Read on.
What3words has given every three metre square of the world a unique combination of three words. Used for e-commerce and delivery, navigation, emergencies and more, it uses the geocode system for the communication of locations, encoding coordinates into three dictionary words which are predefined. The MS Therapy Centre combination is: //referral.warm.lushly
Easter Egg Raffle, tickets £1 each or £5 strip. 3 prizes. Will be drawn after Easter, to allow people to buy tickets when we are fully open again from 12th April. If you won’t be in but would like a ticket, email Sue who will sort for you.
Source MS Trust: One in six of us live with a neurological condition. Millions of individuals, stories and experiences cannot be ignored.
The Brain and Spine Foundation and the Neurological Alliance have launched a new mobile app and website to support people with neurological conditions to more easily share their experiences of care.
By sharing your experiences via the app, you’re not only providing vital information that will help to change the future of neurological care, but you’re also helping to build a community. You can download the app via the link below. Download the app via this link.
Source MS Trust: As the sun begins to make more regular appearances, there’s no denying that brighter days are on their way.
Spring is the perfect time to spend some quality time pottering about in the garden, but when you have MS, the physical nature of weeding, planting, pruning and alike means there may be some obstacles to overcome along the way (and not just those dreaded dandelions!). Iona Creedon, who was diagnosed with MS 10 years ago, has started a new blog all about gardening and MS called Gardening within liMitS.
Iona Creedon talks about gardening with MS, the inspiration behind it and reveals plans for her own garden. Iona shares some green-fingered wisdom here.
An interesting study on mindfulness-based interventions for mental well-being among people with multiple sclerosis.
Source BMJ Journals: Conclusions. A substantial body of RCT evidence now exists supporting the use of Mindfulness-based interventions (MBIs) in PwMS to improve mental well-being. Study quality is improving, but the significant scope for improvement still exists in study design and reporting. What constitutes the optimal MBI for PwMS remains unclear. Read the full article here.