Thursday 23rd May – Cakes needed for MEPC Cake sale, the more variety the better, home-made and bought.
Sunday 2nd – Volunteers needed to shake collection tins at Tesco Extra Abingdon between 10-4pm
Thursday 13th – AGM, 12 at the Centre
Saturday 29th – Volunteers needed to shake collection tins at Millets Farm, Frilford between 9-5.
Bob Nex who received oxygen at the Centre in 2018, died on Tuesday 16th at Sobell House. There is a card at the centre for anyone wishing to sign it for his wife Yvonne.
Source Independent Living: An interesting new supplementary service has just been launched by Motability.
An interesting new supplementary service has just been launched by Motability.
People who lease an adapted vehicle, including WAVs (wheelchair accessible vehicles) through the scheme can now lease a lightweight manual wheelchair at the same time.
The wheelchair option is available to anyone making a new application to the scheme, for any type of adapted vehicle.
It has been designed to ensure that customers have mobility support when they arrive at their destination. Read on.
Source MS Society: Scrap the PIP 20-metre rule.
The PIP 20-metre rule is failing people with MS. And people are losing their independence as a result.
New research shows this is predicted to cost the UK Government £92 million over three years – more than it will have saved by cutting PIP payments.
Now, the UK Government are reviewing their spending for the next few years. This is your chance to tell them the 20-metre rule simply doesn’t make sense – for the UK Government or people with MS. Join the MS Society campaign here!
Source MS Society: Small but mighty, mitochondria provide the energy that busy nerve cells need to survive.
We spoke with mitochondria expert Dr Don Mahad, from the University of Edinburgh, about what makes them so special – and what goes wrong in MS.
Mitochondria and progressive MS
‘I’m interested in energy production and demand in the brain and spinal cord, and especially how this changes in progressive MS.’ It’s the mitochondria that generate the bulk of this energy.
‘Mitochondria are smaller than the size of a pinhead, yet play a critical role in keeping us healthy’ says Don. ‘The healthy brain makes up just 2% of your body but takes 20% of the energy. To meet this demand, mitochondria station themselves all along the nerve fibres.’ Read on.
Source MS Trust: From 1 April 2019, gabapentin and pregabalin have been reclassified as controlled drugs, leading to changes in how they are prescribed.
Gabapentin and pregabalin are drugs used to treat a range of symptoms caused by MS, such as nerve pain, spasticity and spasms.
Following concerns about misuse of these drugs, on 1 April the law changed so that it is now illegal to possess gabapentin or pregabalin without a prescription and to supply or to sell them to others. Read on.
Source BBC: Lifts and adjustable ticket counters will be among the new measures brought in over the next five years.
The changes, part of an “inclusive transport strategy”, will help disabled passengers as well as those travelling with children or luggage. Liverpool Central and Luton in England, Barry Town in Wales, and Dumfries in Scotland are among the stations chosen.
The Department for Transport says the sites were selected based on criteria which included their usage, level of local disability and value for money of the work.
- Train stations are a nightmare for people like me
- Disabled rail users ‘an afterthought’
- MP hopes for station lift ‘within a year’
Transport accessibility minister Nusrat Ghani said: “Transport is vital for connecting people with work, friends and family, but also to enable them to enjoy visiting some of the wonderful cultural, historical and natural sites across the UK.” Read on.
Source MS Trust: NICE will be assessing Plegridy to decide whether it should continue to be prescribed by the NHS in England. We’ll be telling NICE why we think it should be an option. If you are taking Plegridy we’d really like to know what you think of it, your experiences good and bad.
If you would be happy to talk to a member of the Information Team about your experience of taking Plegridy, please email email@example.com.
Last year, NICE decided that Avonex, Extavia, Rebif, Copaxone and Brabio should continue to be available on the NHS in England. At the time NICE was unable to make a recommendation on Plegridy so they are now carrying out this separate appraisal. Whatever their final decision, if you are already taking Plegridy, you won’t be affected. Plegridy has already been approved for NHS use in Scotland and Wales. Find out more about Plegridy here.