MS Society Online Workshop: Loss Through the Lens of Self-Compassion – 8 November

This three week course offers you a space to reflect on loss you have experienced due to living with MS. Some find they have lost their sense of who they were prior to diagnosis, others feel the impact of loss of function and others experience losses such as being unable to work fulltime.

Over the course of three weeks we will encourage you to approach loss from a place of self-compassion. The course will explore the stages of loss, different aspects of loss and the idea of re-evaluating life roles and goals.

Dates: 8, 15 and 22 November

Time: 6pm to 7pm

Book now by clicking here.

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Click here to book your space

MS Society Online Session: Moving Together with MS – 7 November

These Moving Together with MS sessions are led by volunteers and they talk about how getting physically active has helped them to take control of their own wellbeing. These sessions are a great way to connect with others from across the UK to share hints and tips on ways to get and stay motivated to keep physically or functionally active.

Each month they’ll look at a different activity or interest, sometimes with a short exercise session or video included. This November a volunteer will share how her love of horses helps her to stay active while living with MS. She will be joined by special guest, Petra Humphrey from the RDA (Riding for the Disabled Association).

Date: Monday 7 November

Time: 6pm to 7pm

Book now by clicking here

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Book now by clicking here

New and Pre-Loved Costume Jewellery and Cake Sale

New and Pre-Loved Costume Jewellery and Cake Sale

Tuesday 6th December 2022

We have some beautiful new and pre-loved jewellery which will make ideal Christmas Gifts.

We will also have some delicious cakes to purchase and nibble on while you are making your choices!

If anyone would like to donate some preloved jewellery and/or cakes for this sale it will be greatly appreciated.

Christmas Craft Fair

If there is anyone who can lend a hand or two on the day please let us know, either on Tombola for an hour, the MS Therapy raffle or refreshments.

Raffle prizes needed!

Please can you help ~ We need raffle prizes for us for our Christmas raffle, the Christmas Craft Fair raffle and tombola at Harwell Village Hall.

Do you have symptoms that only last a few seconds?

In MS paroxysmal symptoms describe symptoms that come on very suddenly, lasting only a few seconds or minutes before disappearing just as quickly.

The information below comes from the MS Trust. Click on the hyperlinks (the blue writing) and you will visit their website page on the topic.

Many symptoms of MS can come on in a paroxysmal way including:

  • trigeminal neuralgia which gives stabbing or burning sensations down the side of your face, usually on one side only
  • altered sensations in your skin such as itching, numbness, tingling, burning or aching
  • Lhermitte’s sign which feels like an electric shock down your neck and spine
  • shooting pains in the arms or legs which can be very brief but still take your breath away
  • spasms that may cause the sudden tightening of a limb, clawing of a hand, twitching or kicking out of a leg. Spasms may affect your trunk or your face muscles
  • problems with vision including double vision (diplopia) and Uhthoff’s phenomenon which is the temporary worsening of symptoms caused by an increase in temperature
  • swallowing difficulties (dysphagia)
  • slurring of speech (dysarthria)
  • weakness, usually in your legs or feet, which can cause unsteadiness or a fall
  • lack of coordination (ataxia) which may cause you to stumble or drop things
  • freezing of movement (akinesia) which is briefly being unable to move or only being able to move slowly or with extreme difficulty.

Find out more on the MS Trust website: https://mstrust.org.uk/a-z/paroxysmal-symptoms

Asian MS presents: Getting Involved in Research: Participation and Design – 9 November

In this second edition of Asian MS’ webinar series, we will be looking at participating in and designing MS research, with a particular focus on the genetics of MS in people of Asian and African heritage.

Date: Wednesday 9 November

Time: 6pm.

We will meet Ben Jacobs, who is co-leading the ADAMS Study with Dr. Ruth Dobson. The ADAMS study is seeking to understand how genes may influence the development of MS in people from different ethnic heritages. He will be joined by Sadid Hoque, who is part of the study’s steering committee and someone living with MS himself. We will also meet Anneesa Amjad, the MS Society’s Public Involvement Manager, who will be talking about the MS Society Research Network. This will be an opportunity for attendees to learn how they can help to shape and design MS research and research strategy. If you’ve ever wanted to know more about the genetics of MS or participating in/designing MS research, this is the webinar for you!

Book now by clicking here.

This session is organised by the national MS charity the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

MS Society webinar: Talks with MS – Parenting and MS, 2 November

Talks with MS are proud to host this webinar in partnership with the MS Society to discuss different aspects of MS in the Black community. This month they will be discussing the topic of Parenting and MS.

Date: Wednesday 2 November

Time: 6.30pm to 7.30pm

They’ll be joined by Talks with MS Founder, Terri-Louise. Terri will be joined by a panel of parents, some with their children, to share what life is like managing MS & parenting & they’ll be sharing what helps them through the more challenging days. You’ll get to hear it from both perspectives and you can hear more about how parents told their children about their diagnosis and ways they navigate it as a family.

Find out more and book now by clicking here

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk