Source MS Society: Ocrelizumab should be available on the NHS for everyone with primary progressive MS who could benefit. We call on NHS England, the National Institute of Health and Care Excellence (NICE) and Roche to work together to secure a deal to make that happen.
Raise your voice and help the MS Society tell NICE and NHS England: give people with primary progressive MS access to ocrelizumab. Sign their petition
MS Annual Quiz Night, Friday 12th October, The Barn (Didcot Conservative Club), 7 for 7.30 start, £7 per person, up to 8 in a team. Please advertise to your friends, put on your facebook post etc.
Please please can members donate some raffle prizes, especially drink, chocolates, biscuits etc.
Click here for full details poster
August 100 club winners: Barbara Bentley, Lindsay Brain, Linda Tierney.
Do you or your partner have MS? Would you like to help design an app to help people with MS manage fatigue? The University of Sheffield has asked for volunteers to help with their research study. They asked a group of people with MS, and a group of healthcare professionals, about what they thought the contents and appearance of a fatigue management app should be. They would like to know how far you agree or disagree with the things they said. You can take part in this research if you are: over 18 years of age someone living with MS, or experiencing MS-like symptoms regardless of whether or not you have received a diagnosis you have a partner who has MS you are a professional who works with people with MS For further information contact Dr. Peter Cudd (Senior Researcher) at email@example.com or Dr Abigail Millings (Lecturer in Psychology) at firstname.lastname@example.org
Source Science Daily: Cleveland Clinic researchers have discovered a new subtype of multiple sclerosis (MS), providing a better understanding of the individualized nature of the disease.
MS has long been characterized as a disease of the brain’s white matter, where immune cells destroy myelin — the fatty protective covering on nerve cells. The destruction of myelin (called demyelination) was believed to be responsible for nerve cell (neuron) death that leads to irreversible disability in patients with MS. Read on.
We all have or know someone with that bit of equipment stored in the house, the garage or shed, that’s no longer needed.
If you or a relative have community equipment that is no longer needed please call NRS on 0844 893 6960 (Monday-Friday 8.30am-4.30pm) to arrange for it to be collected FREE.
Not returning equipment costs social services and the NHS thousands of pounds every year -this money could be used to make sure other residents get the help they need. Find out more about NRS Healthcare here.
Source MS Research Australia: Brain disease genes linked to primary progressive MS risk.
Despite many genes being found that contribute to the risk of developing MS, so far research has not identified genes that are specific for the risk of developing the primary progressive form of MS. Now, a new international study has shown that rare changes to genes that cause other brain diseases may also play a role in primary progressive MS. Read on.
Harwell Charity Craft Fair, Sunday 18th November.
Craft fair 2018 v1