MS-UK evening workshop: Cognition and MS

MS-UK is running a workshop providing an overview of the cognitive challenges in MS, its impact and the treatment options available. 

  • Wednesday 20 October
  • 7pm
  • via Zoom

MS-UK are pleased to welcome Dr Dawn Langdon who is Professor of Neuropsychology at Royal Holloway, University of London and a Fellow of the British Psychological Society. Dawn is a frequent contributor to international scientific meetings and committees and is a Trustee of the UK MS Trust, with whom she has authored the MS cognition website www.stayingsmart.org.uk. 

Using her extensive knowledge in Neuropsychology and in particular within MS, this workshop will provide an overview of the cognitive challenges in MS, including the pattern of difficulties, the relation to disease variables and how cognitive challenges impact everyday life and wellbeing. Dr Langdon will then present the treatment options and resources available.

If you can’t make the session live, don’t worry as we will be recording the presentation and will make it available to watch again for all those registering in advance.

MS-UK is suggesting a donation amount of £5 for this information session, but you can make a donation of your choosing from £1 to attend.

If you would like to know more about this session or would like help in registering, please email register@ms-uk.org.

For more information and to book, please visit: https://www.eventbrite.co.uk/e/cognition-and-ms-presented-by-dr-dawn-lan…

MS-UK Information Session: selecting the right mobility aid

MS-UK is hosting an information session where they will be looking at the most common mobility aids for walking and how to select the right one.

Event details:

  • Monday 18 October
  • 2pm – 3pm
  • Via Zoom

Dr Gretchen will be talking about the different mobility aids that are available to help with walking. This is a subject which people usually have a lot of questions about, with many people wanting to know when is the right time to start using a mobility aid and how to choose the one that is right for them.

Searching the internet for mobility aids will bring up a wide range of different types of walking aids, making the right choice a difficult decision. So, in this information session Dr Gretchen will identify how to weigh-up choosing one walking aid over another by looking at the pros and cons of each of the most common walking aids that are available and the reasons you might choose it for yourself versus another option.

You will be shown how to adjust the aids to ensure they are comfortable, prevent overuse injuries and are as efficient for your use as possible. They will finish by taking you through the correct way to use the different aids, which will stop bad habits and make its use as safe as possible.

Session overview

  • When to consider using a mobility aid
  • Types of mobility aids and their pros and cons
  • How to fit a mobility aid to your body
  • The proper way to use a mobility aid

The session will then finish with twenty minutes for questions and answers.

If you have any questions about the information session or about mobility aids you want to send in advance to Dr Gretchen, please email register@ms-uk.org.

If you can’t make the session live, don’t worry as we will be recording the presentation and will make it available to watch again for all those registering in advance.

We have a suggested donation is £5 for this information session, but you can make a donation of your choosing from £1 to attend.

Find out more and register here: https://www.eventbrite.co.uk/e/mobility-aids-selecting-the-right-mobilit…

Flu Season 2021

Information from the MS Trust: 

This year, all UK nations are again running an expanded flu vaccination programme to encourage more people to have a flu jab and allow more people to have the flu jab for free. With Covid-19 still circulating in the community, a surge in seasonal influenza (flu) cases could overwhelm hospitals and other NHS services.

Flu can be a serious or even fatal illness, and each year causes thousands of people to become very ill. Like Covid-19, it is a viral infection that can be passed on through coughs and sneezes. If you have MS, you’re more at risk of becoming seriously ill from flu, even if you currently feel well.

By having the flu jab, you reduce your risk of having flu. If you do catch flu after having the vaccine, you are likely to have a milder illness. Having the flu jab also means you are less likely to have flu and Covid-19 at the same time, which could make you more unwell. It is best to have your flu vaccine early, so that you are protected before any outbreaks of flu. You need a new jab each year, as the strains of flu that are circulating change over time.

People with MS can have the flu jab for free every year. It is provided through pharmacies and GP surgeries, as well as workplaces and schools. You may be contacted by your surgery if you have been offered a flu jab in previous years.

You may be offered your flu jab at the same time as a Covid-19 vaccine booster dose. Research has shown that this is safe and that both the flu vaccine and the Covid-19 vaccine remain effective when given together.

Read more information here: https://mstrust.org.uk/news/views-and-comments/flu-season-2021  

Sign the MS Society’s petition for NHS neurology services

The MS Society has launched a new campaign this week.

There are 1 in 6 people in the UK living with a neurological condition – yet NHS neurology services have been stretched, underfunded and overlooked for years. These services were neglected long before the pandemic – but now the situation is critical.

On Wednesday 6 October, the MS Society launched their new campaign, to tell the UK Government not to leave people with MS behind. 

Click here to sign the letter (opens the MS Society website)

Research by the MS Society has found people’s MS symptoms got worse during the pandemic, with over half of them (53%) saying this was caused by not getting specialist support. And, 63% of MS professionals find it very challenging to provide a good service to everyone.
 
We need urgent action to ensure everyone with MS has access to the right professionals and treatment at the right time across the UK.

We’re calling for more funding and support for the neurology workforce, so people can get the essential care they need. 

Source: MS Society Campaign Team, campaigns@mssociety.org.uk

Visual Symptoms survey

Many people with MS are affected by visual symptoms. The main causes of impaired vision are conditions such as Optic Neuritis, Nystagmus and Diplopia, all of which affect the vision in different ways. A symptom unique to those affected by Optic Neuritis is known as Uhthoff’s Sign, whereby the vision is temporarily affected when the person’s body core temperature is elevated. MS-UK is putting information together for people with MS and are looking for feedback from anyone with first-hand experience.  MS-UK say ‘If you have, or still do, experience visual impairment due to your MS, we would like your feedback by answering the questions here: https://www.surveymonkey.co.uk/r/WQHT7JX.

Your input is valuable as we will share it with others who may benefit from your suggestions. We may use quotes from your feedback in our future Choices booklets, but these will be entirely anonymous.’

New assisted travel lounge at Reading station officially opened

The assisted travel lounge at Reading station was formally opened at a special event Wednesday 29 September. 

The travel lounge, which aims to provide a safe, calm and pleasant space for passengers with disabilities and reduced mobility to wait for their train, was officially opened at a special ribbon cutting event attended by representatives from Network Rail, GWR and Reading Borough Council – as well as our member Trish.

The assisted travel lounge first opened in July and since opening has welcomed more than 500 passengers.

Following £180,000 of investment from Network Rail, an empty retail space was transformed into the assisted travel lounge offering passengers with reduced mobility seating at higher levels, an accessible interactive information screen, phone and electronic device charging facilities, and plenty of space for mobility aids and wheelchair users.

Now fully operational, the assisted travel lounge is open daily between 10am and 6pm and is operated by a member of GWR’s customer ambassador team who are always on hand to help any passengers requiring assistance.

Bernadette Sachse, Network Rail’s Stations Transformation Insights Lead, said: “I have had the privilege of working on this project since its infancy as an idea through to a fully operational assisted travel lounge we have today. “We set out to create a safe, light, calm, pleasant space for our passengers to feel safe and comfortable and receive a high standard of customer service. It has been rewarding to see the assisted travel lounge being used so well and how it is clearly benefitting passengers as part of their journeys.”

Find out more about it here: https://www.networkrailmediacentre.co.uk/news/ribbon-cutting-event-marks…

Help raise funds the easy way

Did you know that whenever you buy anything online, you could be raising a free donation for Multiple Sclerosis Therapy Centre Oxfordshire?


There are over 5,200 retailers including John Lewis & Partners, Argos, Uswitch, eBay, M&S, Just Eat, Now TV, Domino’s Pizza and Audible ready to give a free donation every time you shop online via easyfundraising. It only takes 2 minutes to sign up.


Plus, if you sign up and raise £5 in donations, easyfundraising will give us a bonus £5 donation.


All you have to do is:


1. Go to: https://www.easyfundraising.org.uk/causes/omstc/?invite=22UNQQ&referral-campaign=c2s&utm_campaign=raise-more&utm_medium=email&utm_content=raf-e
2. Click ‘support this cause’ and create an account
3. Choose from over 5,000 retailers to do your online shopping as normal and our cause will receive a free donation with every purchase you make.


Thank you for your support, you’ll be helping to make a real difference to Multiple Sclerosis Therapy Centre Oxfordshire.

Macmillan Cake Sale

Sue’s Macmillan cake sale is next Tuesday 19th from 9.30-2pm, please come along with your pennies and support a great cause and if you fancy baking please bring a cake with you too 🙂

Shielding list no longer in use in England

If you’ve been on the shielding list in England, you’ll get a letter soon from the NHS letting you know that the list won’t be used anymore.

Instead of everyone considered ‘clinically extremely vulnerable’ being given the same advice, the UK government now recommends you get personal advice directly from your health care team.

Why is the shielding list ending in England?

The government says there are several reasons to stop using the shielding list:

  • They won’t advise everyone on the list to shield again – partly because shielding affected some people’s physical and mental wellbeing
  • There’s a lot more information now about what makes each person vulnerable to COVID-19
  • Many people have been vaccinated
  • There are now proven treatments for COVID-19

The government says it will still monitor the COVID-19 situation and, based on clinical advice, respond to keep the most vulnerable safe.

No one has been advised to shield since 1 April 2021. And since 19 July, everyone considered clinically extremely vulnerable has been advised to follow the same guidance as everyone else.

Managing your risk

If you or a loved one are considered clinically extremely vulnerable, you might want to read the MS Society information about making decisions around risk

Source: The MS Society (https://www.mssociety.org.uk/what-we-do/news/shielding-list-no-longer-us…)