Source MS Trust: Want to know more about how what you eat can affect your MS? We put some of your questions to Dr Conor Kerley, a registered dietitian who was diagnosed with MS at 16.
Every week there seems to be media coverage of a new piece of research, suggesting that what you eat or drink could make a difference to how your MS progresses. But diet is a hugely controversial topic in the MS world, partly because it’s so hard to do research. As two new large-scale studies of diet begin in the US, we put some of your questions to Dr Conor Kerley, a registered dietitian who was diagnosed with MS when he was 16. Read on.
Source Independent Living: For anybody who is about to purchase equipment to help them manage with a disability, don’t forget about VAT exemption.
Here are the rules regarding VAT exemption for disabled people. Find out when you can buy mobility products and daily living aids without VAT, and how to go about it. And most importantly, don’t forget that you need to get the VAT taken off BEFORE you buy, you can’t claim it back afterwards…Find out more here.
Source Independent Living: Here are some ideas about ways that you may be able to save money on essentials if you have a disability, are elderly, and receive certain benefits, and/or have a low income.
Warm Home Discount Scheme – This scheme provides £140 rebate on electricity bills during winter 2018-2019, for people who qualify. You may be able to get the rebate on your gas bill instead if your supplier provides you with both. Two million low-income households should benefit each year. Find out more.
With Fuelmii, you just phone and they come to your car wherever it is – so disabled people or anyone else do not need to get to a garage.
They work 24/7 with no delivery fee. You only pay for the fuel you get and this is at or below supermarket prices.
This was advertised in the Disabled motorist magazine which we subscribe to and the service is worth recommending to all who attend the Centre.” Find out more here.
Source MS Trust: The MS Trust has praised the pioneering work of the MS Risk Sharing Scheme (RSS) as the final results from the scheme are published in the BMJ today (September 24).
“The RSS was a truly innovative scheme and continues to deliver real benefits for people with MS,” commented David Martin, Chief Executive of the MS Trust. “Not only has the scheme enabled over 18,000 people with MS to access disease-modifying treatments (DMTs), but it has also been the catalyst for the development of MS services, completely transforming the landscape for the 110,000 people living with MS across the UK.
“As administrator of the scheme, we are proud to have contributed to what has been achieved, but we won’t be resting on our laurels. People with MS still face many challenges and we will continue to fight to ensure everyone has access to the best possible treatments and MS services, now and in the future.”
The MS Risk Sharing Scheme was a unique partnership – the first of its kind in the UK – which enabled people with MS to access the original four disease-modifying therapies (Avonex, Betaferon, Copaxone and Rebif) on the NHS. Read on.
Source MS Society: Our new evidence review shows the link between smoking and MS is clearer than ever.
Smoking can make MS worse and speed up how fast people with MS become disabled.
Ahead of October’s annual ‘Stoptober’ campaign, our independent research review shows smoking can:
- make MS more active
- worsen and speed up the accumulation of disability
- speed up the transition from relapsing to secondary progressive MS.
One study found that quitting smoking could delay the onset of secondary progressive MS by as much as eight years.
Find your route to quit today – This Stoptober, we’re inviting everyone affected by MS who smokes to join thousands of others trying to quit. You won’t be alone. There’s support wherever you live in the UK. For more information click here.
Monica specialises in Aquatic exercise and disability active gym at The Park Club. She is affected by the neurological disease ALD/AMN and is aware of some of the challenges people face when going to the gym. Please click here for further information monica instructability leafet
There are also Disability Active leaflets available at the centre.
I have some Radar Keys if anyone would like to purchase, they are £5 each.