‘We live in an information age. Now more than ever before we have ready access to an enormous quantity of data about health, treatments and research – from the internet, though the press, and on social media. But how do we know who to trust and understand what all this information is telling us? Simon from the MS Trust’s Information Team has some tips to help you find the health information you can trust.’
We connected with many members of the disabled community to hear about their experiences in and out of lockdown. From diary entries of a life in lockdown, to families sharing the highs and lows of raising a child with a disability in lockdown whilst services are on pause.
Former teacher, Caroline Coster shares her journey to recovery after overcoming COVID-19 led to sepsis and, ultimately, Caroline becoming a quadruple amputee – her passion for life is palpable.
And we look at the changes being made in the workplace for the disabled community all the way to support and guidance for people who are struggling to adapt to a change in routine.
Plus – as we believe nobody should be left behind – we have an exciting subscription offer where readers can purchase a one- or two-year subscription and gift a subscription to a friend, at no additional cost.
New to book: Massage, available from 9th September, the appointments will be on the hour but will be only 45 minutes long to allow for cleaning between appointments.
Acupuncture, available on Thursday 17th September and then every 1st and 3rd Thursday of the month, appointment times from 9.15 every 45 minutes, cleaning time will reduce the appointment time slightly.
As with the other therapies, I am not back at the centre until Wednesday 3rd so to book any appointment please email me, however, I am on annual leave from Thursday 20th August – Tuesday 1st August. I do not have another receptionist to be able to book appointments.
To keep informed about news from the centre, please sign up to the newsletter via the website main page www.omstc.org.
We are desperate for people to help in the following Volunteering roles:
Receptionist – This role is a front of house role. A receptionist is needed to help initially on a Tuesday morning from 9.30-12.30. Reception duties include: greeting people on arrival, answering the phone, making bookings in the diary, counting money, showing visitors around, taking payments, making refreshments, general office and administrative duties.
Oxygen operators – The role involves understanding the function and control of the mechanical components of the oxygen chamber, knowing and observing the rules for safe chamber operation and for the care and well-being of members. You would be trained by an experienced operator until you are happy with all the procedures. This role could be a few hours a week.
Handy person – A volunteer is needed to help with DIY and odd jobs around the centre, this is probably something that can be done just once a month for a few hours.
If you could ask your friends and family if they or anyone they know might be interested it would be much appreciated.
Helen Croxon is a member of the Beds and Northants MS Therapy Centre and is a student at De Montfont University. As part of her Masters degree, she is carrying out some research into the benefits of mindfulness in MS and needs your help. She has kindly laid everything out below. If you have any questions, feel free to contact Helen direct.
What if something free, simple and readily available could help you to manage your MS?
A review of recent research shows there is ‘evidence to suggest that mind-body therapies are effective for treating common MS symptoms, including fatigue, anxiety, depression…and quality of life.’ (Senders, 2012).
Meanwhile, research into the Headspace app has found that just 10 days of Headspace reduced stress by 14%, reduced irritability by 27% and increased self-compassion, positivity and well-being.*
I am looking for volunteers to take part in a research project to find out whether taking part in mindfulness sessions on the Headspace app could be beneficial for adults with MS. It might help to manage stress, anxiety, depression or fatigue and could even have a positive effect on other symptoms.
Could you commit to doing a free ten-minute meditation every day for 10 days with a 10-minute online survey before and after?
Would you be willing to take part in an online interview if invited?
To take part you will need to have a confirmed diagnosis of MS and be aged 18 or over. You will also need an internet-enabled smartphone or tablet to install the app.
Your answers could help other people with MS who are looking for ways to manage their own condition and will teach you some useful techniques as well. It will also help me to complete my MA in Health and Community Development!
If you are interested, please click on this link for more information and to get started.
It is with great sadness that I have to let you know that Patricia Sadler, has reluctantly decided to stand down from her position as Osteopath at the Centre. Patricia has been with us for over 5 years and has also raised a significant amount of funds for the centre through her singing performances. There are a few reasons she has decided to leave, one of which is the increased demand on her time at her private practice. Patricia will still be working for us throughout September and is offering the following dates and times for bookings:
Please email sue on firstname.lastname@example.org to make a booking. The Centre will not be manned until Wednesday 2nd September.
I’m sure you will miss Patricia and we all wish her the very best. Patricia will support us in the search for a replacement as much as she can. If you know anyone who might be interested please let Sue or Andy know asap.
The government has recently launched a campaign to get everyone to be as healthy as they can be. A big part of this is diet. But for people with MS is following a special diet beneficial?
This is quite a controversial area. Some people swear by the diet they follow or supplements that they take but others who follow the exact same diet may have no benefits or may have unwanted side-effects. Like with most things in the MS world, different things benefit different people.
Both the MS Society and the MS Trust agree that diet is a controversial topic and this is largely due to the lack of research due to its complexity. Below we have some of the different pieces of information that are available on the topic. As always we always recommend checking with your healthcare provider before making changes and always question where your information comes from.