Gabapentin and pregabalin – new rules for prescriptions

Source MS Trust:  From 1 April 2019, gabapentin and pregabalin have been reclassified as controlled drugs, leading to changes in how they are prescribed.  

Gabapentin and pregabalin are drugs used to treat a range of symptoms caused by MS, such as nerve pain, spasticity and spasms.

Following concerns about misuse of these drugs, on 1 April the law changed so that it is now illegal to possess gabapentin or pregabalin without a prescription and to supply or to sell them to others.  Read on.

Access improvements at 73 railway stations

Source BBC: Lifts and adjustable ticket counters will be among the new measures brought in over the next five years.

The changes, part of an “inclusive transport strategy”, will help disabled passengers as well as those travelling with children or luggage.  Liverpool Central and Luton in England, Barry Town in Wales, and Dumfries in Scotland are among the stations chosen.

The Department for Transport says the sites were selected based on criteria which included their usage, level of local disability and value for money of the work.

  • Train stations are a nightmare for people like me
  • Disabled rail users ‘an afterthought’
  • MP hopes for station lift ‘within a year’

Transport accessibility minister Nusrat Ghani said: “Transport is vital for connecting people with work, friends and family, but also to enable them to enjoy visiting some of the wonderful cultural, historical and natural sites across the UK.” Read on.

Anyone taking Plegridy?

Source MS Trust: NICE will be assessing Plegridy to decide whether it should continue to be prescribed by the NHS in England. We’ll be telling NICE why we think it should be an option. If you are taking Plegridy we’d really like to know what you think of it, your experiences good and bad. 

If you would be happy to talk to a member of the Information Team about your experience of taking Plegridy, please email infoteam@mstrust.org.uk

Last year, NICE decided that Avonex, Extavia, Rebif, Copaxone and Brabio should continue to be available on the NHS in England. At the time NICE was unable to make a recommendation on Plegridy so they are now carrying out this separate appraisal. Whatever their final decision, if you are already taking Plegridy, you won’t be affected. Plegridy has already been approved for NHS use in Scotland and Wales.  Find out more about Plegridy here.

New £1.8m research to explore cognitive screening and rehabilitation in multiple sclerosis

Source University of Nottingham: A new £1.85 million research study led by Professor Roshan das Nair at the Institute of Mental Health aims to develop a new computerised screening tool to detect the “invisible” cognitive impairments that can appear early in the life of a person living with multiple sclerosis (MS).

Approximately 100 people are diagnosed with MS every week in the UK and up to 70% have cognitive problems. People are most commonly diagnosed with MS in their 20s or 30s. There is currently no cure for the lifelong neurological condition that often gets progressively worse.  Read on.

Move it for MS


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MOVE IT FOR MS

24 APRIL 2019 2PM-4PM

Please come and join us for an afternoon of exercise, relaxation sessions, tea/coffee/biscuits and chat.

Physiotherapists from the Physical Disability Physiotherapy Service will be running exercise classes and relaxation sessions. The classes will be suitable for people with MS of all abilities, including those in wheelchairs. Come along and have a go!

Information will be available about exercise with MS locally, and Sue Barnden, the MS specialist nurse, will be there.

Please contact PDPS on 01865 904411 for more information or with any questions.

Abingdon Health and Wellbeing Centre, Crabtree Place, Audlett Drive
Abingdon OX14 3GD

April News

Dear Readers,
 The big question is: “HOW much should we be doing, how much is enough, what should I be doing? “

In Generation Games we hear these questions frequently. It is not surprising, since exercising, keeping active and maintaining a healthy lifestyle is now in the news more and more.

The answer is: as much as you are able to! In fact, you are probably already doing a fair bit without realising it! Walking to the bus stop, shops, with a friend; cycling to do the shopping; gardening; walking up and down stairs (anything that gets your heart rate up) – it all does count.

Government guidelines tell us we should be moderately active for at least 150 minutes per week. A nice way to think of this is doing 30 minute chunks on 5 days per week. And if you join one of our classes that’s already 60 minutes (so you’re half way there!).  Strength exercises are also vital – try to do these twice a week, this could include weight training, carrying heavy loads, heavy gardening. Again, strength exercises are covered in Strength & Balance classes.

NHS guidelines on exercise as you get olderN E W    C L A S S E S !

Kingsmere Community Centre, nr. Bicester 

Big Bold and Balance Parkinson’s class 
Thursdays 1.30 – 2.30 pm, starting 25th April
£2 per session (your first class is free)

Strength & Balance class
Thursdays 2.45 – 3.45 pm, starts 25th April 2019
£4 per session (your first class is free)

Northcourt Centre, Northcourt Rd, Abingdon, OX14 1NS

Strength & Balance class
Mondays 1.15 – 2.15 pm, starts 3rd June 2019
£4 per session (your first class is free)

 Book your place here (please specify Strength & Balance or Big Bold Balance)KEEPING FIT AND FUNDRAISING FOR THE BIG KNIT!

“When not keeping fit, some members of our weekly Thame Chair Based exercise class have been busy fundraising in their spare time.  To date we have made 394 knitted hats (with more to come!).

For further details on the Thame class and other classes in Oxfordshire call 01235 849 403 or visit www.generationgames.org.uk.

Kindly contributed by one of our exercise instructors, Charlene Howlett.       – Editorial: news from partners below –

sent to us by Oxfordshire Clinical Commissioning Group
 Do you live in the OX12 postcode area? Your opinion counts!Survey to Plan for the future Health and Care needs in Wantage and Grove (OX12)
We want to know where those services are provided from and where people have to travel to access them. This information will be used to help shape the way services are planned and delivered to in the future.

The survey is launching today and is available at this link:  http://bit.ly/surveyOX12 

Hard copies will be available in public buildings (and your doctor’s surgery) throughout OX12 or by calling 01865 334638 or emailing cscsu.talkinghealth@nhs.net 

 Did you know we have a facebook page where we post class updates and other interesting news. Please “like” our page if you use facebook!  FACEBOOK LINKCopyright © 2019 Generation Games / Age UK Oxfordshire, All rights reserved.
You received this email because you signed up with Generation Games. We will send you quarterly newsletters and information on classes and exercise sessions in your area.

Our mailing address is:
Generation Games / Age UK Oxfordshire9 Napier CourtBarton LaneAbingdon, Oxfordshire OX14 3YTUnited Kingdom

CBD Oil

I am trying to find out whether members would be interested in purchasing CBD oil, possibly through the centre.  

The supplier runs a business that wholesales high quality organic CBD oil to brands in the UK and Europe and he tries to help where he can so supplies Gloucester MS centre at a highly discounted price.

In order to keep costs down we would need to purchase 5 bottles at a time of the oil.  He can supply 1200mg / 10ml organic full spectrum CBD oil with an organic coconut MCT oil carrier for roughtly £40, he says oil of this strength and quality normally retails at £70+, and also can supply 3000mg/10ml  organic full spectrum CBD oil with organic coconut MCT oil carrier for £110 per bottle for you, he says product like this normally retails at £160+.

There are many other products but they are not as strong, although if we are interested he can send me some honey and coconut oil.  They can also make capsules if preferred.


Anyway, if you can let me know if you are interested I can gauge whether it would be worth it and make further enquiries.

Any questions, please ask.

Many thanks,

Sue Doran

Centre Manager

Easter Raffle

Thank you to those that bought tickets for the Easter raffle.  The draw took place on Friday and the winners were:

Large Egg –  Philip Hicks

Small Egg – Nandi Ablett

Happy Easter everyone!

100 club winners for March


Dave Webb 1st prize

Barbara Sleeman, 2nd prize

Joel Baldwin, 3rd prize

sharing a prize fund of: £87.50

Congratulations!

You’ve got to be in in to win it!!

How do families affected by MS manage health information

Source MS Trust: Couples and families develop their own unique ways of dealing with an MS diagnosis. A recent UK study looked at how different family units affected by MS, cope with receiving MS health information. 

In this study, UK researchers wanted to understand how couples and families affected by MS cope with health information.

The researchers analysed interviews with 77 people affected by MS – 12 people with MS, 49 partners or spouses, 7 parents, 5 children, 2 siblings and 2 friends. Read the report here.